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questions for fellow members: Fireplace, whirlpool and other things
MAC & Bronchiectasis | Last Active: Jan 18, 2023 | Replies (17)Comment receiving replies
@nana43 ...This must be difficult for you. Have you had your blood tested for tick-borne diseases or some of the relapsing/remitting arthritis diseases? You may be unique in that your immune system fires up every week to force you to rest. Are you resting enough and drinking enough water during your normal days or are you doing too much when you feel good (like most of us). gayle
Replies to "@nana43 ...This must be difficult for you. Have you had your blood tested for tick-borne diseases..."
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Hey Gayle!
Quite honestly- I have had SO many blood tests, blood cultures, urine, sputum, and 2 bronchoscopies as well as lung biopsy. They don’t have anything definitive other than MAC, Bronchiectasis and high antibodies from aspergillosis previous lung infection. Lymphocytes are high, EOS absolute is high, ANA is abnormal. I know that fever is a symptom of MAC but I don’t know why my pulmonologist is so adamant that there is something else going on with me. ( he’s not got the best bedside manner anyway). So, I was just seeing if anyone else was dealing with this.
Thanks for responding!❤️
Dee