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Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)

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@wifey2021

My husband has (had) a 2.7 tumor in the tail of his pancreas, found incidentally, that was just removed yesterday. He is doing well, and we are thrilled that it is gone. He retained 2/3 of his pancreas and his spleen was removed. I know full well the stress that this brings about. It’s been 4 months of full-on anxiety.

You mentioned having had a number of issues, I wonder if there are scans you can go back to get a growth pattern. He had had a CT to check and hernia repair one year before the tumor was found (tumor went unnoticed at that time). They referred back to it and found that it had not grown. This gave us the confidence to find a NET specialist, as we felt we had some time. Our local doctors did not take the time to do anything other than suggest surgery and we wanted to feel certain it was the best approach. We chose to drive 90 minutes to a university hospital and what a difference! Lots of tests later, he decided on surgery, feeling like he had explored it thoroughly. Time is a gift; use it to your advantage.

I know the watching and waiting would not have been the best option for my husband, as everyone handles that kind of thing in their own way.

All the best to you!

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Replies to "My husband has (had) a 2.7 tumor in the tail of his pancreas, found incidentally, that..."

I have been diagnosed with 16 cm PNET in December 2022.. Discovered accidentally during CT of my chest. Multiple CT, MRI and PET scans later, I am going for surgery on February 1st. Preparing for the worst and hoping for the best!🙏

I’m glad he is doing well. Big hugs to you both. It’s very scary. I’m having surgery in the morning for a NET 2 cm in the tail of my pancreas and spleen removal.