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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Feb 6 6:57am | Replies (1506)
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@kimh

Hi @jessienalu, I agree that you absolutely need real help. Having said that, I am my GP's and GI's only patient with this disease and they are coordinating my health care. As long as your doctor is comfortable reaching out to colleagues for advice, you should be okay. There is no cure unfortunately and not much reading out there, but we can all share our experiences with one another to help. The one thing that I have noticed is that this relapse is quite different than when I was previously diagnosed almost 5 years ago. There is a lot of trial and error involved as well as keeping stress to a minimum and certain physical activities as well (sweeping, cleaning windows and....sad to say....yoga!)

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jessienalu | @jessienalu | Nov 20, 2018

Thank you. I was at the doctors today. Seems like things are «looking up». I found out today that she had previously referenced me to the wrong specialist. She referenced me to some sort of cancer department, and not a gastro specialist. They told her to do a stool test of me and get me an appointment with a gastro specialist. So that’s what she did. Can’t wait to meet and speak to a specialist that hopefully can help me out.
What you are writing at the end just made me have an epiphany. That explains everything. Why I’m rolling on the floor with abdominal pain after I try to do yoga or walk up a lot of stares. I just thought it was menstrual cramps, even though I didn’t have my period. Wow. I am blown away. I have a lot to think about now 😅

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