Hi @pcfromfm
Hahaha, you are not old news!! I check the Mayo posts daily, but once I started to feel a little better, my contributions became less and less. Human nature!!! Anyway, my GI is slowly weaning me off prednisone (because I have been on them since August 2017), but this weaning down had currently sent me into a relapse. He is probably the top GI in my city, but I think even he is getting frustrated! I am currently still on a very low dose of prednisone and tamoxifen as well, but I think he may start looking into immunosuppressant medication which seems a little scary to me. I honestly don't know what else to try. I have heard about thalidomide, but it is apparently very difficult to get here. At the moment, he hasn't given me any direction so I am on pain medication and trying not to sink too low into depression. I haven't found any diet triggers, but because of my hypothyroidism, I am already on an extremely low carb diet. I have also been cutting out foods like eggplant which I read are inflammatory. I actually find that physical activity is the biggest contributor to my pain. I've had to give up yoga, which was so healing to me in other ways.