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DiscussionGastroparesis with severe symptoms!
Digestive Health | Last Active: Aug 13 9:08am | Replies (460)Comment receiving replies
Replies to "I was diagnosed with gastroparesis in Nov 2022. I have stomach pain in the center under..."
I have been diagnosed with EGJOO and Mild Gastroparesis, Hashimoto disease, Neuropathy of feet. I have been on 1 stool softener, Gabapentin- 300 mg - 1 in morning and 2 at night to sleep. I have 5 pieces of black licorice and it helps to empty out. Gas-x 2 after every meal. Small meals are helpful. I had an esophagus dilation and Botox in pylorus valve. Dilation helped but Botox didn’t. Hope you find a good gastroenterologist.
I've had the condition for 20 years. (though symptoms are feeling full & stomach gas, continuing to keep me up at night; all contained in my stomach area). Seen every western MD, gastro doc & every alternative practitioner there is. And now, at 70, I'm seeing an ND (granted, out of pocket costs) & nutritionist who at least had me take a SIBO breath test. And while the Vagus nerve (which runs many organs including the digestive system's motility) can certainly be the culprit (& very difficult to stimulate, even with most drugs), the SIBO breath test - for me - revealed high levels of methane in my stomach over the course of a 3-hr (easy at-home) test. With that, a potential cause was a bacteria that can cause the motility issue, for which I took a 2-wk course of antibiotics (Rifaximin suggested). Since I felt no better, a very good nutritionist wanted to to me on a diet (based on the FODMap diet regime) for several weeks. ND also had me get an herbal aid: Atrantil for the gas symptoms. We'll see how that works after a week of taking 3x daily.
But even the nutritionist & ND admit that one can have slow stomach motility, which then allows the bacteria to form, or visa-versa. And as you know, that's the mystery. But at least a good nutritionist or ND (or even a GOOD gastro doc) should be recommending various digestive enzymes, bitters (taken before meals, ginger supplements (straight ginger tea - no sweetener; I drink 2-3 cups daily) can be helpful. You should try Iberogast (made by Bayer in Germany), though only available on-line. I've been taking yoga & done daily meditation, However, while those things haven't much worked for me, they CAN work wonders for others with this affliction, since (as you read in may of these blogs) every body of different & reacts differently to various herbs, drugs, exercises, & other protocols. I assume you've also had an endoscopy to check for general stomach/duodenum function, as well as (with a biopsy while they're doing it) for the bacteria H. Pilori? Again, you NEVER know what you may get a good 'hit' on.
So, in summary, just keep trying to see what may be found for your case & what may just work (even a little). Thanks for posting & good luck.
I have had all the symptoms you and everyone else is writing about for the last 5 years. It is a struggle each day with no answers. Some days are better than others. All I can say is we all are different and act differently to the food we eat. Still searching for answers here. Good luck.