I have been there, too, needing support. This is the blog site that led me to Mayo where they did an exploratory and found my MP was symptom of underlying rare cancer, they did exploratory and saved my life. I know I could not have endured the pain of my symptoms any longer without exploring more options. I understand the economics and in this age of “Go Fund Me Page” I would suggest that might be an option for those who are suffering so much without relief after exploring all seemingly possible options.