Wow @aland! Your symptoms sound awfully familiar to me....except my pain is on the right....I have been weaning off the Prednisone (I have been on them since August 2017) and the pain has returned to the point that it feels like a complete relapse. My GI hasn't responded to my numerous emails and/or calls to the office for some sort of direction which is very frustrating to be sure. I am also on tamoxifen which is supposed to help. Maybe I would be worse without it? I almost think that medical hands are being thrown up in the air as to what to do to help me. I actually had a life before I was diagnosed with this disease. We all did. Try not to get frustrated, but I think most of us on this forum have been frustrated at some point or another with the lack of help and research. I would be interested in hearing about the pain management clinic and if it helps you. Take care.