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Welcome to the NETs Group! Come say hi.

Neuroendocrine Tumors (NETs) | Last Active: Apr 17 5:51pm | Replies (384)

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@hopeful33250

Hello @pennypowell and welcome to Mayo Connect and the NETs discussion group. I am sorry to hear about your wife's NET diagnosis. It always comes as a surprise. The DOTATATE scan is one of the best ways to track the NETs. Is it possible for her to have a med for relaxation prior to the scan?

Do you have a list of questions for the oncologist when you meet on Friday?

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Replies to "Hello @pennypowell and welcome to Mayo Connect and the NETs discussion group. I am sorry to..."

Hi,
Even with the meds she says she isn't able to do the scan. She has has so many over the years that her anxiety is horrible.

We have talked about a few questions but I need to write them down. She has been though so much that she is thinking that she doesn't want to do anything. The decision is hers. It feels like we have been on a roller coaster with her health for the past seven years. We have been together for eight years. Three years ago she had major surgery to remove abcesses and mesh from her belly. She had fistulas also. When she came home from the hospital she had a wound the size of a volleyball that I had to pack. It did heal but over the past year she was having recurrent bowel blockages which is what lead to the last surgery. We are both tired. She is retired and I am still working and doing my best to care for her.

Thanks,
Penny