Hi @jcdeep,

I can imagine how worried you must be, and I want to thank you for reaching out to the Connect community. Living with a chronic condition can be so difficult and frustrating. Here is some information about Sclerosing mesenteritis care at Mayo Clinic, which I would encourage you to read:
https://www.mayoclinic.org/diseases-conditions/sclerosing-mesenteritis/care-at-mayo-clinic/mac-2035509vdouglas

You may notice that I moved your discussion and combined it with this existing discussion on sclerosing mesenteritis as I thought it would be beneficial for you to be introduced to the many members in this group – I'm tagging @kimh @jaimeworth89 @doron @musicflowers4u @warlick @sjean @pcfromfm @fernandoparce @cconnors @bertbiz @vdouglas who've also been living with MP and who would be happy to answer your questions.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

@jcdeep, as you will read, sclerosing mesenteritis is rare, and it's not clear what causes it; has your current healthcare team in the hospital given you an explanation for what's causing the pain? Have they prescribed any pain medications?

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