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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)

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@jcdeep

I am currently inpatient at a hospital I got admitted from the emergency room. It has been 10 days now and I have had an EGD, Chest x-ray, CT scan of abdomen and pelvis with contrast, a laparoscopy, and countless amounts of blood tests. The doctors tell me I have something very rare and she has never seen it her entire career. Biopsies were taken during the laparoscopy and I am still waiting on results to see if it is cancerous. I am not being told much so I reviewed some of my procedures to see if I can get answers. I found that the radiologist may think it is sclerosing Mesenteritis Which was found in my CT scan. Every other test has come back unremarkable, the only thing they see is thickening of the Omentum But are unable to find an underlying cause. They also found I have bilateral plural effusion, which they performed thoracentesis to remove the fluid In the right side plural space. It was tested and found negative for malignancy unable to find the cause of why the fluid was there. I decided to go to the emergency room after having excruciating pain in my abdomen for about a month and difficulty breathing which turns out to be from the pleural fluid. The pain in my abdomen started off on my lower left side but has really moved all around. The pain seems to get worse at night and in the morning. I am a 42 year old male with no major medical history besides a ruptured esophagus that has been repaired. I also have peptic ulcer disease and just discovered I also have H. Pylori. Has anyone else been diagnosed with sclerosing Mesenteritis? What where your symptoms? I feel like I am going to leave the hospital with no answers or help because they can’t officially diagnose me.

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Replies to "I am currently inpatient at a hospital I got admitted from the emergency room. It has..."

Hello @jcdeep, welcome to Connect. I am sorry you are having trouble getting answers and trying to find out what to do next. I am tagging our moderator @kanaazpereira to see if she is able to move your post and combine it with the following discussion where you will be able to meet other members who share your symptoms. In the meantime you may want to read through the discussion to see if you can find any answers.

Groups > Digestive Health > Mesenteric Panniculitis or Sclerosing Mesenteritis
-- https://connect.mayoclinic.org/discussion/mesenteric-panniculitis-or-schlerosing-mesentertis-auto-immune-around-small-intestine/

@jcdeep have you found anything that helps you cope with the symptoms?

John