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New to PMR - Are Monthly Labs and Check-ups normal?
Polymyalgia Rheumatica (PMR) | Last Active: Aug 11, 2023 | Replies (71)Comment receiving replies
I have read on a number of sites that when you taper/withdraw from Prednisone you may experience withdrawal symptoms. As I have read they will mimic both Prednisone side effect or PMR itself. I found. it very difficult to distinguish between them. I developed neck/shoulder discomfort and Thundering heart particularly at the 5mg to 4mg level. Again another reason for me to choose a slow taper method. Those symptoms at a reduced intensity just re-started the other day as I tapered to 3.5mg. By the way I decided that my taper plan would be at .5mg rate and my Rumey said I should be able to handle a 1mg rate. As I said before I chose the slower rate because of the cataract surgery and what I feel is my sensitivity to change. good luck with your journey
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I , like John maintain a daily log of pain levels and especially where pain is and how long it lasts. Since I began Dead Slow Nearly Stop my experience has been my neck/shoulder I call it soreness because it calms to a very acceptable level after I have been up for 1-2 hours. My thundering heart is most pronounced when I wake, then all but disappears within 1-2 hours. I began the DSNS routine 12/18/22 after the AM Cortisol and blood tests. Also note I have seen my Rheumatologist once 4/22 since then all discussion has been via MGH Patient communication system. I’m OK with this because of the nature of PMR and he is very responsive to my concerns and we are on the same page with the “Listen to your body” approach” My conclusion is that there are no set standard of treatment for PMR. Reading comments on this site with guidance from my Rheumatologist keeps me focused on this journey.