1. < Prostate Cancer

Defeating Prostate Cancer

Posted by pnowlan78 @pnowlan78, Jan 10, 2023

Diagnosed @age 76 PSA 20 Gleeson Score 9 all the urologists wanted to take it out.After interviewing 12 men who had the cut done It scared the wits out of me !The first urologist lost his temper with me for not having it cut out!The second showed how he would do plastic insert with a pump in the scrotum.I complemented him on his nice desk and left.The third one said it could be saved.So a TURP that backfired with me in .ICU .9 weeks Radiation Followed with testosterone reducing injections Now PSA is 0.06,Am I in for pain once the Lupron Stops?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

digger | @digger | Jan 14, 2023
In reply to @proftom2 "Digger, 2 years, 1 month. Yes, tiny bit to the thigh bones, bone pain is daily,..." + (show)
@proftom2

Digger, 2 years, 1 month. Yes, tiny bit to the thigh bones, bone pain is daily, but learning to live with it. I did 25 rounds of Radiation, 4 months Chemo, still on ADT with a side order of Abiraterone. Eat mostly fruits + veggies/wholewheats. Walk/Swim/Tai-Chi/Recumbent Bike, lite weights, bands, with meditation, creative writing, reading, check in with buddies couple times per week. Try to care for the soul of myself and others.

Jump to this post

Good luck my prayers are with you 🙏

REPLY
melcanada | @melcanada | Jan 15, 2023
In reply to @ford1929 "Stage 4 grade 5 Lupron every 3 months and Zytiga 2x day. Recent CT scan showed..." + (show)
@ford1929

Stage 4 grade 5
Lupron every 3 months and Zytiga 2x day.
Recent CT scan showed tumors are shrinking. Side affects are awful, but I manage. PSA is going down.

Jump to this post

what are side effects for you on zytiga

REPLY
1 reply
ford1929 | @ford1929 | Jan 15, 2023
In reply to @melcanada "what are side effects for you on zytiga" + (show)
@melcanada

what are side effects for you on zytiga

Jump to this post

Hot flashes, anxiety, fatigue, depression, lack of concentration, brain fog.
But we are hopeful with the results of our latest test and PSA decreasing.
I feel it’s worth it at this point.

REPLY
1 reply
dirtdancer | @dirtdancer | Jan 16, 2023
In reply to @ford1929 "Hot flashes, anxiety, fatigue, depression, lack of concentration, brain fog. But we are hopeful with the..." + (show)
@ford1929

Hot flashes, anxiety, fatigue, depression, lack of concentration, brain fog.
But we are hopeful with the results of our latest test and PSA decreasing.
I feel it’s worth it at this point.

Jump to this post

I was on this same regime. In addition to your side effects I also had joint pain and other issues and other issues. Eventually, my doctor switched me to Ebearla. Brain fog lifted. Lethargy set in. But I tolerate Ebearla far better.

REPLY
1 reply
ford1929 | @ford1929 | Jan 17, 2023
In reply to @dirtdancer "I was on this same regime. In addition to your side effects I also had joint..." + (show)
@dirtdancer

I was on this same regime. In addition to your side effects I also had joint pain and other issues and other issues. Eventually, my doctor switched me to Ebearla. Brain fog lifted. Lethargy set in. But I tolerate Ebearla far better.

Jump to this post

How were your test results while on Zytiga?
And now ? PSA levels ?
This is my 4th month on the Zytiga.

REPLY
melcanada | @melcanada | Jan 21, 2023

Similar Stay on Zolodex for as long as possible and get PSA every 3 months After 5 yrs it came back in L2 lumbar which I had radiated to take out i1 inch Back on zolodez 2 year but pSA from 1.2 to 6 so may go on Enzulutimide as well

pray

REPLY
binkygirl | @binkygirl | Jan 27, 2023
In reply to @digger "How long have you been stage four What exactly do you have has it gone to..." + (show)
@digger

How long have you been stage four What exactly do you have has it gone to your bones and which ones I also am stage for and what all have you taken so far I would love to know thanks

Jump to this post

My husband has just been told he has this. Some in bone, just a little elsewhere. Would love to know what you’ve had to take to battle and maintain. We are just devastated. My biggest thought is how do we live this and stay happy.

REPLY
2 replies
bobby66 | @bobby66 | Jan 27, 2023

I got lucky and they found my cancer in my prostate way early only one small spot out of the 12 that they took as samples. Been on Lupron for 2 years and just finished those now too but I need to know how can I get back to my regular sex life do I need to get injections or do I need to eat different foods anything that rebuilds my testosterone let me know please

REPLY
2 replies
bobby66 | @bobby66 | Jan 27, 2023
In reply to @bobby66 "I got lucky and they found my cancer in my prostate way early only one small..." + (show)
@bobby66

I got lucky and they found my cancer in my prostate way early only one small spot out of the 12 that they took as samples. Been on Lupron for 2 years and just finished those now too but I need to know how can I get back to my regular sex life do I need to get injections or do I need to eat different foods anything that rebuilds my testosterone let me know please

Jump to this post

I had 28 treatments of radiation along with those l u p r o n injections in my latest blood test showed I was at . 01 which is way better than the 37.5 I was at to start with

REPLY
melcanada | @melcanada | Jan 28, 2023
In reply to @bobby66 "I got lucky and they found my cancer in my prostate way early only one small..." + (show)
@bobby66

I got lucky and they found my cancer in my prostate way early only one small spot out of the 12 that they took as samples. Been on Lupron for 2 years and just finished those now too but I need to know how can I get back to my regular sex life do I need to get injections or do I need to eat different foods anything that rebuilds my testosterone let me know please

Jump to this post

Forget sex Stay alive Use 10 fingers and tongue if you must Keep testosterones down as its the fertilizer for pC

REPLY
View MoreView Less
Please sign in or register to post a reply.