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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)

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@mpdx

Three years ago after new lower right quadrant pain, CT saw “misty mesentery” and was told it would resolve. This week CT said possible mesenteric panniculitis. Spent a long time reading past posts here.

I have come away with the following:
1) sometimes autoimmune in nature and AIP diet can help
2) typical treatment involves prednisone or meloxican(m?)
3) lymphoma is sometimes/often(?) related (hate hearing this)
4) very few specialists in US (with Mayo - Pardi or Alexander- being leaders.)

What other insights am I missing?

Do “they” do any sort of scan looking for lymphoma or other cancers?

Guess I should mention the fb group. Is it still there?

Currently awaiting follow up with gastro. Pain level went from bearable to almost intolerable.

Thank you to all who have posted. And sorry if this isn’t in right format or place.
Tim

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Replies to "Three years ago after new lower right quadrant pain, CT saw “misty mesentery” and was told..."

I had a biopsy for MP and it was confirmed, been on steroids 6 mths, now off, only on tomoxefen. I have blood tests to check for Tumours. I am getting cramps Under my chest. Not sure what that is all about. Just been for another Ct scan.