Hello @tonyleduc and welcome to Mayo Connect. Connect is a great place to share your concerns about health issues. While we are not medical professionals, just patients like yourself, we do offer a listening ear and support while you are seeking answers.

It sounds as if you have a number of problems that are causing you discomfort as well as concern and that is certainly understandable. Many of us at Connect, have had long-standing health issues that were difficult to diagnose and we pursued many avenues before getting to a correct diagnosis and treatment plan.

You do not mention having had surgery for the mass on the abdomen, is that something that has been considered? Have you considered a second opinion by a large research oriented hospital like Mayo or other university medical center? Complex problems are often best diagnosed and managed where there is research and many specialists who can sort through the different symptoms and reach a diagnosis and a treatment plan.

I would like to invite another mentor, @vdouglas, to this discussion. Perhaps he can add some of his own experiences to your post.

I look forward to hearing from you again.

Teresa