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Peripheral Neuropathy and benign fasciculation syndrome.
Neuropathy | Last Active: Mar 6 11:38pm | Replies (101)Comment receiving replies
very interesting. i was just at mayo clinic a few weeks ago as ive been dealing with twitching, numbness and pain for months now. ive had several EMGs and no indication of ALS, but neuro at Mayo tested my pulse in numerous positions and believes there could be TOS. first i had heard of this possible diagnosis. i am seeing a vascular surgeon tomorow for additional tests to confirm.
Question, did you have any muscle twitching with your TOS? ive had twitching for months primarily focused in my arms
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@josed10 Yes, I had muscle twitching in my hand, on the pinky side of the palm and forearm, and my hands would turn bluish or purplish and be blotchy and get cold to the touch. Those are symptoms of TOS. There were also times that half of my forearm was numb, and my physical therapist would loosen things up and get the feeling back.
I had vascular tests at Mayo for TOS where they placed tiny blood pressure cuffs on each finger so they could measure what happened when my arm was in different positions. I'm guessing they might do that with you. If you do have TOS, what can help a lot is physical therapy with a PT who also does myofascial release. Here is our discussion on MFR.
Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
There is a provider search at http://mfrtherapists.com/