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Neuroendocrine Tumors (NETs) | Last Active: Apr 17 5:51pm | Replies (384)Comment receiving replies
First of all, I'm sorry about your challenges, but it sounded like you have a positive attitude which is so essential.
But a statement you made caught my attention. PRRT (which I have had) is not a monthly injection. It's a targeted, infusion treatment done every 8 weeks following a specialized PET CT (Lu-177 Lutathera) which identifies exactly where the tumors are. Sounds like your doctor wants to start you on monthly injections of Octreotide (Sandostatin) which are given every 28 days. It's frequently the first line of treatment. It should help the diarrhea, flushing, etc.
Hoping for the best outcome for you.
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Thank you for the clarification. He mentioned PRRT and the monthly injections in the same sentence so I assumed that’s how PRRT was administered. I have my PET scan and echocardiogram both scheduled for 1/25 for follow up consultation with Oncologist on 2/1. Should have a better idea of next steps at the 2/1 meeting. Appreciate all the support.