← Return to Scared - Suspected NET on tail of the pancreas

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@colleenyoung

@rockchick, welcome. I know you're scared. I hope you saw the helpful posts from members like @kim1965 @wifey2021 and @smt. You may also be interested in the posts in this related discussion:
- Anyone out there have PNET experiences and outcomes to share? https://connect.mayoclinic.org/discussion/neuroendocrine-neoplasm/

Rockchick, have you had surgery?

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Replies to "@rockchick, welcome. I know you're scared. I hope you saw the helpful posts from members like..."

Thanks all! Had the surgery on January 24th, 2023 and Doctor was right. It was a non-functioning neuroendocrine tumor. Fortunately, a bit smaller than previously thought - 1.6cm. They got it all and took the tail of the pancreas while preserving the spleen. (If you can, push for that as many oncologist surgeons just want to take your spleen because it is easier. But they don't always have to and safer to have a spleen with all the potential pandemics coming.)

There was no spread. Have to be checked every few months for a while.

Though mine was robotic surgery, it was a lot more painful than they said it would be. Due to a small fistula, I am also still on a drain 3 weeks later, so not thrilled about that. But reminding myself that at least they found it early and got it out. I DO have a bit of "scan-xiety" now though. Need a mammogram and am afraid.