I totally agree with Lori that the first 100 days are very crucial and scary. The body is experiencing so much as the new immune system is going haywire. My kidneys were failing, I had a severe gut GVHD and kept going to the hospital with random fevers.

The body is very fragile during that time. Fatigue and muscle deterioration made me bedridden. It was a balancing act trying to start regaining muscle tone and not wanting or being able to do anything besides resting.

I’m 6.5 years post transplant. I have chronic skin GVHD, but my meds control it. I have a very full and productive life for a 57 years old. Things get better as time goes by.

Have your friend connect with us here. We each had a unique transplant experience, but still had a lot in common as far as our post-transplant side effects were.