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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)Comment receiving replies
Hi @kimh,
Mayo Clinic in Rochester, Minnesota, ranks No. 1 as the best gastroenterology and gastrointestinal (GI) surgery hospital in the U.S. News & World Report, and Mayo Clinic doctors care for more than 200 people with sclerosing mesenteritis each year. Here's more information about Mayo Clinic's approach:
– https://www.mayoclinic.org/diseases-conditions/sclerosing-mesenteritis/care-at-mayo-clinic/mac-20355090
If you do decide to make an appointment at Mayo Clinic, you could do so by calling any one of our appointment offices. You can also request an appointment online. The contact information for Minnesota, Arizona and Florida can be found here: http://www.mayoclinic.org/appointments
I hope this helps.
Replies to "Hi @kimh, Mayo Clinic in Rochester, Minnesota, ranks No. 1 as the best gastroenterology and gastrointestinal..."
Thanks Kanaaz,
I hesitate only because I am concerned that there has not been a lot of research done and I would hate to get another opinion only to be taking the same medication that I am already on. I will read about the Mayo Clinic's approach though. I'm beginning to get frustrated with this bout (since August!).
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I will keep it in mind, only that distance and cost are a non starter. I do read these post and I'm starting to see a commonality with many of MP patients. One is that MP, a rarity among auto immune disorders is also a precursor that some have noted either Lymphoma and or tumor growth that is happening after some years with MP. I'm also seeing here is that there are only a few MD's who are truly looking for and to help patients with this disease. Medications, as the condition (Auto Immune Disease) which signs and symptoms resulting in inflammation which is a response to something the body is working to repair and fix. Our disease (MP) is piggy backing off treatment for RA and other severe inflammations of the body and the medication that is prescribed to MP patients appear to have a primary link to RA etc. So, without asking for treatment over the internet, do you know of any other medications that are built to treat MP specifically or is MP just grouped into the (other type) of AI diseases. In the Northeast, it seems we treat a good share of oncology type diseases but do not focus of AI (auto immune) type diseases like the Mayo. However, after going through oncology from what of my more severe MP outbreaks, they were in the dark when it came to MP, and the fact that MP has a higher secondary affliction rate of lymphoma and tumor. But asking oncology what should my screening be because of my MP. One highly own MD with a high success rate of treating and curing lymphoma looked at me with a puzzled look saying there isn't any relation of MP and a higher rate of lymphoma or tumor cases. However, the NIH and other well known publications have even documented a higher rate of lymphoma of tumor cases. They just can't get the % down yet to anywhere from 28% to 42% higher chances.