I was dx with ADHand ALH in 2018 and had excisional biopsy (surgery) to remove the areas in question. I cleaned up my health and stress levels instead of going on Tamoxifen. Unfortunately it returned in 2019 and went through the same thing. It took me a couple of months but I went on Low dose Tamoxifen. 5mg daily. I had the screening every 6 months alternating Mammo/US with MRI. All was great until this past December 2022. They once again found the ADH in my right breast. I am going back and forth with either having surgery to remove the area or bilateral mastectomies and never have to worry again. How many times can they do surgery and remove parts of my breast. For me the low dose Tamoxifen is not the answer and I’m not sure I want to go on a higher dose. I had genetic testing and all markers for BC are negative. I am at higher risk bc of getting my period at an early age, I’m 55 and have not gone through menopause, I have dense breast tissue and ADH 3x. My breast surgeon is more concerned that I am on Tamoxifen and it still came back. The studies are showing low dose is working. Just not for me. I’m meeting with 2 other surgeons for their take on it. Also meeting with plastic surgeons to really understand what mastectomies entail and what my options are. It pays to be fully aware of your risks and options and know what you feel you can deal with. I want to know I will be here for my 2 children who are 22 and 24. So the end game is my motivator. Which is living life without worry. Tamoxifen studies only followed patients for 15 years. Then they don’t know how people did. Sooo, at 70, do I want to go through this again?? Actually, do I want to go through it again now???
Always keep in mind, There is no wrong decision.