Hi all,
I was diagnosed with Sjogren’s Syndrome and fibromyalgia when I was 31. I am now 64.

About nine months ago, a weird pinpoint rash developed all over both calves. It itched like crazy, and never went away. My dermatologist tried creams and steroids, but neither worked.

At the same time as the rash developed, I lost all interest in food. Had to pretty much force myself to eat and drink protein drinks. Nine months later, I have lost 60 lbs.

Finally, my dermatologist prescribed Naltrexone, which cleared up the rash and itching, but did nothing for the appetite problems.

My doctor referred me to our local cancer center for a complete work up. They said that based on the tests I have already had done (colonoscopy, EGD, chest x-ray, CT scan of abdomen, x-ray of long bones) they can pretty much rule out cancer. But they strongly think my problem is autoimmune. They took ten vials of blood and I will get the results on Tuesday.

I have an app that allows me to see the blood tests when they come in. My TSH was way high and a lot of liver tests were wacky. But my ANA was negative!

I’ll update this on Tuesday.