← Return to Head and Neck Concerns in EDS/HSD

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@edsasfnf5

@rjmtwit...I have a family member that has the same jaw issue. I read articles of them being able to make a mouse hypermobile but have not released details on the find as of yet still a ways. The way I understood what they found is that it is a production problem that's why they couldn't find a gene but will have to wait for the research release. Cortney Gensemer, a postdoctoral scholar, is one of the researchers that may be able to answer your question in the near future. Also there is some other researchers that are working on the same area. If you go to the Statnews website there is an article on 12/12/2022 ehlers-danlos-syndrome-patients-turned-researchers Titled "Revenge of the gaslit patients: Now, as scientists, they’re tackling Ehlers-Danlos syndromes." Even though they are working on EDS there research would also answer other connective tissue issues across the board. (My opinion)

Thanks for the chiro info will definitely ask about the digital motion X-ray. I have vascular connective tissue issues on top of hypermobile along with an anesthesia allergy and a blood clotting disorder. (Mouth full I know) So I'm not cleared for any surgeries unless it is a threat to do nothing. I'm to the point I will try anything to improve but I avoid doing anything on maybes. So thank you! for sharing your experience that makes me feel more comfortable looking for a Regen dr and getting my ligaments tightened. It would me great if my ligaments in my neck are tighten and it stops my positional migraines as well as stop my imbalance. 🙂

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Replies to "@rjmtwit...I have a family member that has the same jaw issue. I read articles of them..."

@edsasfnf5, I noticed that you wished to post a URL to an article with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

- Revenge of the gaslit patients: Now, as scientists, they’re tackling Ehlers-Danlos syndromes https://www.statnews.com/2022/12/12/ehlers-danlos-syndrome-patients-turned-researchers/