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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 3 days ago | Replies (2917)

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@ktpatton

I am hoping that someone with similar symptoms could share any advice on lessening the specific pain that I experience. After a EMG test I was diagnosed with moderate neuropathy and mild radiculopathy. It seems to be confined mostly to my feet, where I have a combination of numbness (feeling cold when they are not cold), stinging or burning, soreness, and occasional jolts that are like an electrical shock. Often it is concentrated in my toes, but also affects my whole feet. Occasionally one of my feet seems to "cramp" up. Uric acid tests rule out gout. I have tried various medicines, both prescription and over-the-counter (Gabapentin, Lyrica, Motrin, Meloxicam, etc. ) I have soaked my feet in warm water, with and without Epsom salts, tried massaging them, and elevating them. If you have similar symptoms, do you have any suggestions that helped you? Thank you.

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Replies to "I am hoping that someone with similar symptoms could share any advice on lessening the specific..."

Hi @ktpatton, Welcome to Connect. Sorry to hear you are struggling to find something to provide relief for your symptoms. You are not alone. I don't have the pain with my neuropathy, just the numbness in the feet/legs. I posted my story earlier on Connect in another discussion here - https://connect.mayoclinic.org/comment/310341/.

You mentioned a pinched nerve which I'm wondering if it may be the cause of your symptoms. There is another discussion on Myofascial Release Therapy (MFR) that has helped some members. Here is a link to the discussion - https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

You also mentioned having tried various different medicines without much help. The Foundation for Peripheral Neuropathy has a list of complementary and alternative treatments listed here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

Have you tried any complementary or alternative treatments to see if they might help?

@ktpatton..A nurse told me putting icy hot cream on will give a pain break. I'm trying it in a little bit. So I will post back with the review. I have Autonomic Neuropathy but mine is both legs, hands and arms. Hang in there, Chin up.

I recently started Tegretol. I don't know yet how it will help but if you haven't tried it, you could give it a shot. I can keep my symptoms at bay for a good part of the day by massaging my feet with Voltaren gel, from the toes to the ankle then wearing warm socks and good shoes. I use the gel 3 to 4x a day.
I hope this helps