Today was a set back but I was encouraged by all your experiences. Found out my Bone Scan wasn’t good. I now find I have to up my Prednisolone dose to 3 MG and take bone meds. I get the impression that neither the medical industry or my doctors know very much about this condition. I have found it hard to get consistent information on diet, are tomatoes good for your our bad, that depends on who is writing. And if they are then why not sweet pepper or potatoes? And Chocolate? Good or bad?

Today, I feel like I am going backwards when I thought I was making progress. Although it’s a little selfish, it is somehow good to read your experiences and not to feel so alone. I haven’t been using exercise to help but now I will. Thank you for all your positive posts. Has anyone any experience with bone density meds. I don’t want to start taking something that makes PMR worse.