Diagnosed with sarcoma? Let's share

Thank you. Well, I have actually considered second opinions. Also, we are currently seeking for treatment for this nearby, but since this thing is extremely rare, we are considering to be just a bit more sure about this stuff for further treatment.

@bicycle3 glad to know that it is stable now. I hope you are doing well. How are you now? Can we ask how many times have you had surgeries incase of this? We would like it if you would please inform us that after how many days have you had chemotherapy after surgery. Also, what was the gap between 2 or 3 surgeries? How long has the treatment been going on after diagnosis? We would be grateful if you would elaborate. We're really caught in a mess currently, for which we're so.. I don't know, curious about stuff which we thought would never bother us? :/ Sorry for the large amount of questions, but we would be grateful if you would provide us with information so that we can get out of this current mess.

I had surgery in 2001, 2020 and 2021.
The chemo was in 2020 along with 15 radiations on calcified liposarcoma on hip. Chemo was once a month for 4 months. then I broke my tibia so took a few months off.
Now I finished4 radiations on chest and 2 chemos.
The chemo does not show improvement so new erubilin is prescribed. Waiting for insurance approval.
In the mean time I have applied to see doc at Sloan Kettering, 6 hours away.
Waiting for answer.

Greetings.
I have been recently diagonised with dedifferentiated liposarcoma (which was found out through biopsy after removal of tumor). The surgery is already done and I'm currently recovering from it. The retroperitoneal tumor has been removed, but it has been noticed that there is still some residual left, and the doctors said that since it's situated a large area, radiation wouldn't work. Treatment through Chemotherapy is still not confirmed. They have been saying that it needs to be operated on over and over a numerous amount of times, and I have been considering alternate therapies and methods. Any suggestions on what path to take? Is there a treatment of such kind of liposarcoma without any other surgery methods?

Hello @barman I am a five year survivor of high grade dedifferentiated liposarcoma. Needless to say this is a hell of an ordeal. May we (collectively) ask where it is that you reside currently? My diagnosis followed a biopsy and then 4 weeks of radiation followed by surgery 3 weeks later. In my case it was determined that there wasn't a chemotherapy that would be helpful but that was 5 years ago and there are some great advances that have been achieved in the interim. I agree with the group that you would greatly benefit from a high level sarcoma center at this stage and Mayo Clinic is at the top along with a few others.

I was diagnosed with high grade de-differentiated liposarcoma in May 2017 in the upper right chest wall. Following 2 surgeries to both remove the mass and rebuild my chest I have been living cancer free for five years.

Last week a lump was identified on my right femur. I met with my surgeon and we have scheduled an MRI for next Monday.

I am a wreck.

Hello. I'm 60 years old and was diagnosed with rhadomyosarcoma two years ago. I'm still under treatment as the tumor has jumped from one place to another. Is there anyone out there has the same diagnose as mine? I was told this is a very rare disease in older age because it's mostly only children.

Sadly no