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Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (410)Comment receiving replies
Hi everyone,
I’m a 59 old male who was diagnosed with stage 4 Neuroendocrine/ acinar cancer in the Pancreas body along with small spots on my liver. I’m going on two years of chemo treatments. The cancer I have is rare and only consists in 1% of all pancreas cancers.
I have been of Chemo for almost two years and have tolerated the treatments very well. I’ve also had genetic testing done so I could provide with my family if this was hereditary so they could look out for this in their bodies. The good news was this wasn’t hereditary. I’ve been treated locally and have been to Dana Faber in Boston for a second opinion. Another good thing is my mail lesion on the Pancreas has shrunk about 60% fro the original size and the small spot on liver also decreased.
I’m always wondering if there is any other treatments that I can do along with the chemo to shrink the cancer. Feel free to charm in or contact me.
Praying for all cancer patients. 🙏🏻
Replies to "Hi everyone, I’m a 59 old male who was diagnosed with stage 4 Neuroendocrine/ acinar cancer..."
Anyone out the with Acinar Pancreatic cancer. Found in only about 1 percent of Pancreatic cancer so having no luck finding someone wit the same diagnosis.
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My wife was diagnosed with NET in April 2022, with mass on tail of pancreas, and too many tumors on the liver to count. Our team started her on chemo pills, along with Lanreotide monthly injections for the last 9 months. The NET has been reduced enough that cancer team is ready for surgery March 1st to remove mass and as many spots on liver as possible. The team believes that they can make it a maintenance issue only afterwards. How have you been able to tolerate the 2 years of chemo?