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RSD/CRPS

Brain & Nervous System | Last Active: Apr 26, 2023 | Replies (118)

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@johnbishop

Hi @andylynn, Welcome to Connect. I think you are right, early intervention and detection typically has good outcomes. Your questions are well thought out and ones that if it were me, I would take to my primary care doctor or care team to see if they have some thoughts. I did find an article that is similar to what you are asking that might provide more information and another one from 2014 on early detection.

-- Predictors of long-term post-thrombotic syndrome following high proximal deep vein thrombosis: a cross-sectional study:
https://thrombosisjournal.biomedcentral.com/articles/10.1186/s12959-020-00253-8
-- Dermatological Findings in Early Detection of Complex Regional Pain Syndrome:
https://jamanetwork.com/journals/jamadermatology/fullarticle/1861486

Are you still being treated for Post thrombotic syndrome (PTS) or is it watch and wait?

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Replies to "Hi @andylynn, Welcome to Connect. I think you are right, early intervention and detection typically has..."

Thank you for the information! Greatly appreciated. I will definitely check it out. I have found a couple papers but did not come across the one you suggested.

I have had CRPS for 13 years. Undiagnosed DVT 13.5 years ago which evolved into a massive DVT, ankle to groin! First PTS then CRPS. I am very knowledgeable about CRPS but am seeking specific information.

Thank you for your response.