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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)
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@lauraadam2425

I go to the respiratory department in the hospital to try and give sputim samples every month. They try to help but always comment that there isn't anything coming up. I can feel my lungs are heavy but nothing is loose. Sometimes I get a very small amount for a test but takes a lot of work and a long time.

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Replies to "I go to the respiratory department in the hospital to try and give sputim samples every..."
Sue, Volunteer Mentor | @sueinmn | Jan 15, 2023

Jane - Even though it doesn't seem like it when you read about it on Connect, Bronchiectasis & (especially) MAC are quite rare. As a result many smaller communities lack pulmonologists and respiratory therapists with a good understanding of our conditions and how to treat them. You may need to seek out professionals with more experience. National Jewish Health (NJH), the Mayo Clinics, and several other places in the country are highly experienced in treating us.
Is there any chance you can seek treatment in one of those places?
Sue

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