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HPV P16 positive cancer

Head & Neck Cancer | Last Active: Mar 26, 2023 | Replies (107)

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@anybody10

I to have been diagnosed with positive HPV16 cancer on the back of the tongue and a tumor on the voice box. I am waiting for an appointment to find out where I go from here. It's getting more painful daily with a constant sore throat, headache and ear pain. I am 79 and will not go through any disfiguring surgeries. I would love to hear from anyone who has been through this. Please don't mince words I want to know what to expect.

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Replies to "I to have been diagnosed with positive HPV16 cancer on the back of the tongue and..."

They typically would do a surgery on your tongue and then radiation. Unless you can’t have the surgery.

I had it on back of tongue and voice box stage 4 . Chemo and radiation got rid of mine. Almost 10 years now . First 3 radiations i had no more ear pain. But , side effects after it all are the killer I have not felt good since .and it also ruined the heart valves..

I went to ctca in zion Illinois.. I still have my voice box no disfigurement I just have bad side effects. I had to have the valves in my heart replaced and I have trouble swallowing and I ended up with 2 autoimmune diseases lupus and MS ..I did for radiation and chemo get a threachea and a feeding tube and a port ... but said they all came out after my treatments.. they did like 6 months after I was done.. I was stage4