Thank you so much! I do follow the EDS blog, but I’m new here. I spend so many hours researching HSD/EDS and all of the comorbidities. There is so much to learn and digest just about the physical side of it, and trying to figure out all of the overlapping mood disorders as well is beyond stressful. My daughter has an aversion to any kind of supplements or medications, which seems to have developed as a result of experiencing negative side effects from medications; her eating disorder plays into that as well. So even though she has serious nutritional deficiencies, she can’t take the supplements that she’s been prescribed. Her nutritional deficiencies can also cause many of the symptoms she deals with - anxiety, fatigue, sensory issues, brain fog, digestive issues. So from what I understand the same symptoms that can come with EDS can be caused by her nutritional deficiencies, as well as MCAS.
I know she needs immediate help with her mental health but how do we ever find a program that will take all of these factors into account? I’m afraid to put her into a residential program, she won’t be able to function with cookie-cutter rules and schedules, just considering her chronic fatigue and pain. I’m leaning towards a PHP or IOP but everything I find gets such bad reviews.
I am going to ask about the pharmacogenic testing when we see her physiatrist this week.
I really appreciate your responses and all of the links you included, I will be sure and check them out. Thank you so much!