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@mglinkhart

Hi J, I struggle every day with the aim fine syndrome. I’m alone a lot so I hide it well. I’m so sorry you too are going thru this. The meds I’m am taking make me so sick. When I did the 8 rounds of chemo at least there was a light at the end of the tunnel. But this, is not my happy place. I have so much to be thankful for with the exception of a husband only pretending to to care THIS TIME so people don’t shun him like last time I had cancer. It’s all too much tidy. It was an awful day. Thank you for writing. It means the world to me. Maria

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Replies to "Hi J, I struggle every day with the aim fine syndrome. I’m alone a lot so..."

I'm sorry to hear you are not tolerating your meds well and sorry you don't have real support from those closest to you when you need it the most. I am finding it difficult to talk about how I feel even though I do have support from my husband. The cancer is always on my mind.....it's very difficult to act like life is good, when you are so anxious about what the future holds.....living for today s definitely easier said than done. I guess we just have to do our best....whatever that is. I hope tomorrow is a better day for you.

Maria,
I am sorry that you are going through this alone, my wife has stage IV MBC, and we are so blessed to have family and close friends that are so supportive and encouraging, we don't live near biological family, but our church family has filled in the void. I too wish there was education not just families but for everyone, prior to this diagnosis for Jenny, I had no idea what cancer patients and their spouse or caregiver go through, I'm not sure about you, but our life is like a rollercoaster ride, we never know what is in store for us each day, but recently she has been having some great days. I'm sorry that you don't feel any support from your husband, Jenny and I openly talk about her cancer, death, etc., and we are big jokesters, she said to me once "it's a good thing you don't have cancer, you wouldn't be able to handle it", we both laughed, but it's true-I'm a big baby.
Do you think maybe your cancer diagnosis has scared your husband, or maybe he is angry about it, and projecting it onto you ? Do you talk to a therapist ? You are not in this alone, I have not been able to find a group of spouses of those diagnosed with MBC, but I feel lucky to have found this group, being surrounded by others that know what you are going through feels like a big ((hug)). Feel free to reach out anytime, Kris