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Breast cancer spread to liver, skull, spine, ribs, hips etc.
Breast Cancer | Last Active: May 13, 2023 | Replies (67)Comment receiving replies
Your story sounds so similar to mine. I had a mastectomy, chemo and radiation 12 years ago. Was on anastrozoleand Tamoxifen for over 10 years. Stopped Tamoxifen in Sept of 22. Sore hip in March of 22 turned out to be bone metastases. Cancer also found in liver and lymph. Been taking faslodex, zometa & verzenio since April. Fortunately I am tolerating the meds very well, but am just hanging on mentally...waiting for them to stop working. Like you I don't want to make family/friends feel bad and worry so the standard line is I feel great....really feeling not so great emotionally but doing my best.
Replies to "Your story sounds so similar to mine. I had a mastectomy, chemo and radiation 12 years..."
J,
In 2014, my wife Jenny had a lumpectomy and radiation. Nov 2020, she fell to her knees while walking the dogs due to a crippling pain in her back, was diagnosed with stage IV MBC with mets, and several compression fractures throughout her entire spine, and mets scattered throughout multiple other bones, none in any organs. You are on the same treatment plan that she is, she started with 150mg Verzenio, and over the course of her treatment, her ONC lowered her dose to 100mg, now she's on 50mg. She was having major issues with the side effects, especially in the beginning, glad to hear that you are tolerating it well. She gets the Faslodex inj's monthly, and recently went from monthly Zometa IV's to every 3 months, she's been on her treatment plan for two years, and it is still working. I'm curious as to which Verzenio dose you are on, if you wish to share.
We also feel as thought we are waiting for the other shoe to drop, I understand the not feeling so great emotionally, but hang in there, and yes, living for today is easier said than done.
Reach out anytime, Kris
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Hi J, I struggle every day with the aim fine syndrome. I’m alone a lot so I hide it well. I’m so sorry you too are going thru this. The meds I’m am taking make me so sick. When I did the 8 rounds of chemo at least there was a light at the end of the tunnel. But this, is not my happy place. I have so much to be thankful for with the exception of a husband only pretending to to care THIS TIME so people don’t shun him like last time I had cancer. It’s all too much tidy. It was an awful day. Thank you for writing. It means the world to me. Maria