Welcome@skywave to our group. You share a common problem, with this rare disease. We are from around the world and yet can connect on a good level with crazy symptoms, possible causes and a plethora of bits to help. We understand your worry, your concerns and frustrations. We share them all. I have found there is always someone who can relate and thus help to start progress to better health. Suggestions above from @vdouglas as a perfect example. I have taken solice in the idea of at least we are in this with an understanding group. Welcome!