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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
My name is Jane I am new to the site and was diagnosed with mac in 2/22. I have been on the 3 antibiotic 3 day a week regiment since 8/22. Is anyone using a nebulizer and fluttered and if so does it work for them. I have used it twice a day since last August with no results. I can't bring up sputim for testing to the point where they did a broncoscopy one time to get a good sample. I feel like it is there, but can't bring it up.
Replies to "My name is Jane I am new to the site and was diagnosed with mac in..."
@lauraadam2425...It's frustrating to work so hard and get no results. I use the nebulizer 2x a day with asthma medications and albuterol, 3 nebs in all. Then I use the flutter valve while doing postural drainage. (see youtube) Mucinex and extra water help get the mucus loosened up and the drainage with flutter valve helps it get out. My pulmonologist noticed the bronchial tubes close up when I cough. It took 14 months of the Big 3 to kill the MAC. Don't give up. Think of it as Non-tubercular Mycobacterium. Thank goodness we don't have to stay in sanitoriums!
hang in there. Some of the other members use 7% saline. What do you use?
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I’m pretty much in that same boat. I use a nebulizer three times a day, a vibrating vest twice a day, and a flutter valve device twice a day. A couple of times a week I will cough up a chunk of mucous, but cannot produce enough sputum to do a culture.