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DiscussionOsteoporosis: What tests confirm diagnosis and treatment options?
Osteoporosis & Bone Health | Last Active: Jun 27 6:42pm | Replies (43)Comment receiving replies
Replies to "Right now my concerns are 1) why is this happening - and so quickly, 2) can..."
I went from oseopenia to osteoporosis in what seemed like a short time. I was a very active women, walking 4 miles a day and my bone deterioration did not make sense to me. I had a urine test to determine that I had abnormally high calcium amounts in my urine. I saw an endocrinologist who determined that one of my parathyroid glands (we have four) was overactive and needed to be removed. I am two years post surgery and due for another dexa scan and blood work to see improvement in my bone density. Last year my dexa showed a marked improvement. I am on Fosamax weekly and toleranting it well.
I refused to settle for "older people lose bone density" My mother died at age 90 and never had a broken bone or on any medication. Good luck with your decisions and testing.
@leeosteo I am also sensitive to meds and to many foods. I despaired for many years that I could not tolerate any osteoporosis meds, and meanwhile I was on a cancer drug that worsened bones. I ended up with 7 fractures. I even went to an immunologist for desensitization.
I finally went on Tymlos and discovered that the pen has 8 clicks (Forteo is always full dose). I worked with my doctor and started at two clicks. When side effects settled I increased slowly, step by step until I reached 7 clicks. I have been on that for more than a year with few side effects. Those that do occur, tend to disappear. I still cannot do the full dose of 8 clicks!
I will follow with either Evenity or Reclast depending on DEXA in April. My doc understands my sensitivities and is going to try 1/4 dose Reclast to see how I react. I will hydrate before and after, take tylenol, maybe benadryl, and ask for a very slow infusion. I'll let you know how it goes.