← Return to Symptoms throughout the day: A pattern is emerging

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@shariscorner

I don’t know if doctors will get all this figured out in my lifetime, but I choose to have hope for a cure. It will take a ton of research to figure out what exactly covid did to us so they can treat it. I don’t blame doctors for not knowing what all to do. They are figuring it out with us. I’m the only Long Covid patient my PCM has. She is scared to even treat me because she doesn’t know what to do. Even Mayo says they have no one like me. Most people like me never walked out of the hospital. I fought really hard to still be here. I’m on oxygen 24/7 and am trying to get a double lung transplant just to live. I have pulmonary hypertension from all this, along with all those other Covid symptoms. I get sick with respiratory infections or flu-like symptoms often and for weeks or months at a time. We have to keep fighting to live while they figure this all out. It’s really hard, we are all struggling here. I hear you, I validate your symptoms, and I care. Hang in there everyone!!!

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Replies to "I don’t know if doctors will get all this figured out in my lifetime, but I..."

I.feel your pain I am in the same boat. I jBe little to no immune system. I can be fine go around others they have no idea they are sick and within 48 hours I am in isolation for the next few months. It is very frustrating to say the least. I really pray someome.will make a discovery. God bless