I guess I am pretty fortunate. I live in Canada and have an excellent doctor who discovered my PMR. He stays constantly in touch with the rheumatologist and orders the tests for my inflammation, minimally, once per month.

He let me make the decision when to start the prednisone. We decided to go slowly up to 10, I have had bad side affects in the past. I have been on 10 mg for two months and all my symptoms have gone. We decided that 1 month more on 10mg and then go down a mg a month until I get to 1 or 2 mg.

I guess what I am saying with all this is that there are still some doctors that really care, and listen with empathy. Ours has been and is a shared PMR
journey.

I have been very active with all my health issues and take action. I have read some very good suggestions here which I am looking forward to implementing. I live on my own so I had to change some things so that I could take care of myself; like buying a grabber, a bench to shower with and preparing meals sitting down instead of standing to name a few. Thanks for your help.