Hi I'm Suzi,
I tried to find a group dealing with lymphedema because I am having so much pain. I thought I wrote something to introduce myself already, but can't find it. After six surgeries on my right foot to fix my right big toe, I have chronic lymphedema. I had a great surgeon who tried to replace the cartilage but my body rejected everything he used. He fused it so I don't feel bone on bone with every step. I needed more surgeries to have all the metal and screws taken out as soon as my bone fused. Now I have damaged lymph nodes that cause constant swelling and pain. The pain started five years ago, but the lymphedema is from the surgeries the last three years. I count my blessings but I am frustrated because only those with constant pain can understand. I've had PT and now have a pump to help move the harmful fluid out. Naproxen and tylenol help a little. We are a military family, serving for four generations. I know this is so minor compared to the men and women who've lost limbs and have terrible wounds. I feel guilty complaining at all. Thought someone in this group might understand and have suggestions. Thanks