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DiscussionWhat topics do you want for the Neuroendocrine Support Group?
Neuroendocrine Tumors (NETs) | Last Active: Feb 8, 2023 | Replies (45)Comment receiving replies
Replies to "How are you being treated?"
Started with two rounds of CAPTEM. Didn’t work at all. Then did 10 rounds of FOLFIRINOX, followed by 50 rounds of FOLFIRI. I was stable from Oct 2020 until Oct 2022 on FOLFIRI. Scans in November 2022 showed growth in a few liver tumors so I started PRRT with octreotide injections in December 2022. Second PRRT treatment is in February.
What are they doing for you? It’s so interesting to me how they have to design treatment for each of us because every case is so different!!