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Stage 3 Kidney Disease and Diet: What can I eat?
Kidney & Bladder | Last Active: Aug 26 12:20pm | Replies (800)Comment receiving replies
Hi Ginger: His GFR had dropped over a long period of time to 9. He had been very fatigued but now became nauseous for several days. He had two medical offices tell him to go to ER and he agreed. Then when he hung up the phone he said we could go tomorrow. My reply? Absolutely not. They initially put a port in near his collarbone and started dialysis the next day. They put a chest tube in before he left the hospital and set us up with DaVita. I actually feel somewhat relieved that we can now face this head on and he feels better. I know he’ll remain non-compliant - that won’t change. When he got back from DaVita yesterday, he said he could continue drinking 128 oz of fluids. I called the center today and they told me no more than 60 and they’ll discuss it further with dietitian😕
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ldrlsw Yes, things will be different from now on, definitely. I hope your husband listens to his DaVita team, and follows their advice. The nausea is always a big flag when your eGFR gets low, and they use that to gauge getting onto dialysis. When I started PD, my eGFR was about 13%, and I had decided that the combination of active chemo for multiple myeloma and rapidly dropping eGFR was a bad combination. My energy was so bad. Now my kidneys have recovered to 18% since September, and my chemo meds are working more efficiently! That's a win-win in my book.
Here is a link to what the National Kidney Foundation has to say about fluids while on dialysis: https://www.kidney.org/newsletter/thirst-tips-dialysis-patients#:~:text=Most%20dialysis%20patients%20need%20to,and%20make%20dialysis%20very%20uncomfortable.
And what they have to say about fluid overload, and its effects: https://www.kidney.org/atoz/content/fluid-overload-dialysis-patient#:~:text=Most%20dialysis%20patients%20need%20to,ice%20chips%2C%20or%20frozen%20grapes.
We cannot force someone to do something they do not want to do, or are willing to do, so I hope your husband will be able to see how being non-compliant may affect his health.
Ginger