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Synovial sarcoma: Proton or conventional radiation after surgery?

Sarcoma | Last Active: Feb 26, 2023 | Replies (16)
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@winter23

My daughter (37) has had a tumor removed from the palm of her hand . It was a large mass. Clear cell sarcoma. Just completed 5 weeks of daily radiation causing brutal swelling & blisters. Scheduled for removal of 3 fingers in 5 weeks. Will be left with thumb & pinkie (best possible outcome) Has anyone else had this experience? We are terrified parents.

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Replies to "My daughter (37) has had a tumor removed from the palm of her hand . It..."
Colleen Young, Connect Director | @colleenyoung | Jan 22, 2023

Hi @winter23, I can imagine that you are worried and terrified for your daughter. I'm tagging other members like @rgotto41 @sauer01 @ellengrubb @damlady2 @vivianfromaz who have experience with soft tissue sarcoma.

I'm sorry that she will lose 3 of her fingers and that the daily radiation has caused such painful swelling and blistering. Is radiation complete now? Is the hand slowly healing? How is she doing?

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