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Any Adhesive Arachnoiditis members here?

Spine Health | Last Active: Dec 4 6:51pm | Replies (117)

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@colleenyoung

@meri91364, I am very sorry that your friend's unresolved pain and lack of answers has him thinking that suicide is the only answer. Pain can lead to such desperate thinking. You must feel at a loss and want to help him.

Here are a few thoughts that may sound like trite and insurmountable at the same time when dealing with pain. But I sincerely hope they give you and your friend a starting point.
1. Contact the Office of Patient Experience at Mayo Clinic to understand why they couldn't help him.
Here's the contact info:
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Phone: 844-544-0036 (toll free)
Email: opx@mayo.edu

2. Call or text 988 the 988 Suicide & Crisis Lifeline (https://988lifeline.org/) to speak with a trained counsellor.

3. If you are worried that he may take his life, you can also call or text the 988 Suicide & Crisis Lifeline (https://988lifeline.org/) to speak with a trained counsellor or visit their website for helpful information of how to support your friend: https://988lifeline.org

Is your friend currently in the care of an AA specialist or neurologist?

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Replies to "@meri91364, I am very sorry that your friend's unresolved pain and lack of answers has him..."

There is no treatment for AA.
I know this because I have it too. I’m just trying to cope but I’m in a lot of pain.

My suggestion would be to contact Dr Forest Tennant. He has treated 800 patients with adhesive arachnoiditis. He can go on Arachnoitis hope and find a lot of very helpful information. He also has made several utube videos which are extremely helpful. He is a Godsend. There is no miracle drug for AA but there is a protocol to follow.