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Pelvic pain - Persistent genital arousal disorder (PGAD)?
Chronic Pain | Last Active: Apr 28, 2023 | Replies (14)Comment receiving replies
Have your doctors ruled out other issues that can cause pgad? For me, it appears to be caused by nerve compression (chronic radiculopathy found at L5/S1) I have an upcoming MRI to figure out which issue I have with my spine and nerves so we can get the situation fixed. I am beginning to view pgad more as symptoms that something else is going on in my body, rather than an actual diagnosis. I know some would disagree, but, for me, this seems to be the case. Are you familiar with Dr. Irwin Goldstein’s work or have you heard any of the interviews by Dr. Robert J. Echenberg? There are some great materials that discuss the five regions which may cause the problem (end organ, pelvis/perineum, cauda equina, spinal cord, and possibly the brain) You can go to http://www.isswsh.org and click on the resources/videos to learn about this. Have you had an EMG/NCS or MRI? My understanding is that the EMG/NCS will not show small fiber neuropathy, but a punch biopsy could help with making the diagnosis.
Replies to "Have your doctors ruled out other issues that can cause pgad? For me, it appears to..."
I’ve had EMG nvs Mris xrays you name it.
That’s why I’m looking into MR NEUROGRAPY.
But you have to have a doctors order and finding one right now seems like looking for the end of the rainbow
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Thank you for your reply. I will check out the link you posted. Interesting that you mention L5-S1 nerve compression because the MRI showed this. I originally had endometriosis that they thought burrowed deep in my pelvis and attached to the lumbar/sacral plexus. The pain originated in the sacrum that felt like back labor and the nerves would fire from there. The MRI showed nothing at that time. About 8 years ago I started having leg and feet pain that has progressively been getting worse. It gets unbearable if I walk even a few blocks or do any movement or stand or sit too long. The PGAD symptoms started during this time. I had a lumbar MRI that showed narrowing at L5-S1. It is confusing.