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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: 1 day ago | Replies (282)

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@colleenyoung

Welcome @linda19. Oh, your hand does look uncomfortable. I'm tagging fellow members @cherman @raebaby @ellen50 @jt67 @susanop @bcoimbra @lacy2 @emishell2022 @wiedd @drolker @susanop @txbren @hotfooted who also have experience with erythromelalgia and can share their tips for dealing with flares.

I'm encouraged to hear that the swelling has gone down. Are your flares often associated with winter and colder temperatures? What are your triggers?

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Replies to "Welcome @linda19. Oh, your hand does look uncomfortable. I'm tagging fellow members @cherman @raebaby @ellen50 @jt67..."

Yes it is usually winter, though sometimes it happens with summer air conditioning. Other than temperature I can’t identify triggers. When my back d’y gets warm I start to get red, hot and itchy. Can be during exercise, but especially bad about an hour after I fall asleep