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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
Hi thank you for starting this thread. I don't know if I have sjorgens yet but if I don't I'd be shocked. I see a rheumatologist at the end of February. It was actually my sinus doctor that mentioned sjorgens to me last summer
I never even heard of it. I'm also seeing the rheumatologist for fibromyalga I'm pretty sure I have it it started lastnyear as well shortly after my gallbladder surgery and has just progressed anyway I'd love to talk to others. My sinus dr did do about five antibody sjorgens bloodwork which were normal. My throat though couldn't possibly get more dried out. Then shortly afterward few months ago my eye Dr diagnosed me with dry eyes. I think I have silent reflux too so my mouth/ throat is really a struggle. Thank you for listening.
Replies to "Hi thank you for starting this thread. I don't know if I have sjorgens yet but..."
I had all those symptoms for years and all my tests were normal. Not now....all my tests come back as Sjogren's. I pushed hard but couldn't get any medical help....but keep after it. The sooner you address each of the symptoms the better you can feel, although it's progressive I'm hoping to be aggressive with treatment and reverse what I can. If you don't feel 'normal' you're not 'normal'. Advocate (as exhausting as it is).
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I’m also getting a Sjogrens work up. I had a salivary nuc med scan that showed my left salivary gland isn’t working correctly. I understand what you’re experiencing. Everything is dry. Can’t swallow food without liquid. I have a lip biopsy tomorrow. This would be my 5th autoimmune disease. I’m nervous! And exasperated that I might have another. Thank you for hearing my rant.