I am on 400 mg twice a day now. Still having slow weight gain, but the burning pain is gone. With good physical therapy, I’m starting to resume more weight-bearing activities, like walking in my neighborhood. It is still painful while and after I walk, but I don’t have hours of red, burning toes and feet that keep me awake.
I’m also scheduled to go to a Dysautonomia Clinic for a full assessment. I’ll keep you guys posted on that. I’m skeptical but agreed to go. I guess Dysautonomia could be a new discussion thread!