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PMR and exhaustion

Polymyalgia Rheumatica (PMR) | Last Active: Jan 15, 2023 | Replies (7)

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@lmoross

I have tapered to .5 mg of prednisone after being on it for more than 4 years since my PMR diagnosis. Starting Actemra 6 months ago had allowed this and has basically put me into remission. I am pretty much pain free, but exhaustion remains a huge problem. I sleep 10+ hours per day and still feel exhausted. My rheumatologist and I have discussed this and wonder if it might be due to long Covid which I have experienced since I was infected in July 2021. I lost my sense of smell then also that I have never recovered. I understand how debilitating exhaustion is. My heart goes out to you.

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Replies to "I have tapered to .5 mg of prednisone after being on it for more than 4..."

I have taken Actemra for the last 4 years. I got off prednisone about 3 years ago. It took approximately a year for the overwhelming fatigue and exhaustion to gradually improve after getting off prednisone. I'm still relatively pain free from PMR.

I have never tested positive for Covid. I did have a viral infection while on prednisone with PMR which wasn't good. I recovered but yes, it was a huge setback for me too. It took a long time to recover.