Hello @realshadowfax and welcome to Mayo Clinic Connect. I found a discussion that I thought you would benefit joining so you will notice that I have moved your post here:
- Benign fasciculation syndrome (BFS): https://connect.mayoclinic.org/discussion/benign-muscular-fasciculation/

I did this to connect you with members such as @jeff87 @bigt20 and @alwaysanxious who have recently joined the discussion and who may have some information they can share with you.

I wonder if you have had your magnesium and potassium levels checked as part of your diagnostic process?

After experiencing many of the same symptoms months ago I was anxious about ALS until it became clear from research that BFS is literally thousands of times more common than ALS, which is extremely rare and usually accompanied by other symptoms. My symptoms became gradually worse until it was messing with my sleep and moved to almost every part of my body at one time or another. Checking my bloodwork from about six months earlier I noticed that in addition to being slightly high in thyroid reading, my calcium level was at the bottom of the normal range, so I started calcium supplements (ground egg shells) and the symptoms have largely disappeared, though I have an occasional hand or leg twitch. I knew if I went to the doctor he would probably have wanted to do all kinds of things to CYA. A lot of the internet sites that have information about BFS don't mention just how rare ALS is and this tends to scare people needlessly.