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rosaliemarie - I too went to Mayo and neurologist told me the same thing about lyrica and gabapentin, both I was put on by my primary doc. I have all numbness and she said that these two drugs together or individually can possibly make the neuropathy worse. I figured she knew more than me, so I have not tried it again. No side effects with lyrica but when I was on gaba, it gave me anger issues on just 300 mg daily after 2 weeks on the drug, a possible side effect.
Replies to "rosaliemarie - I too went to Mayo and neurologist told me the same thing about lyrica..."
you don't need the drugs to deal with neuropathy. Here: If you haven't tried TENS, I highly recommend it. You can find them on Amazon or eBay for less than $50. The key to using Tens successfully is to place the transducer pads over a nerve that feeds the problem area with the problem area between the two nerves. Step up the current until you readily feel it and then step down one setting. Using the device with high current isn't necessary to get relief and will cause muscle pain if done often (the pulses create muscle contraction and you don't want much of that. They are portable with wireless remote controls. So, you can put them to work under your clothes and go about your business. Also, you can Google for Acupuncture/Acupressure charts showing nerve points; if you don't feel the current on a low setting, experiment by moving the transducer to a different spot. There is a wealth of info to be found on Google for how to use them. Many nights I would get no sleep if I didn't have mine next to the bed available for use. My PN is sort of weird, some nights it doesn't bother me at all and other times it is hell on earth.
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I’m moving soon (again), back to a state I lived in when this PN started. I had a consult back then (6 yrs ago) with a Neurologist at the medical university hospital. Back then, she just reviewed what my local Neurologist had done, and advised a “watch and see what happens” back then. I lived 3 1/2 hours away from her so I couldn’t let her do the watching, especially since I was still in a wheelchair back then and overnight travel was an extreme physical (and financial) hardship for us. We then eventually ended up moving to another state. I’m actually moving to her part of that state now and decided to sign her up as my Neurologist. Maybe as my owner (partner) she’ll have ideas or final thoughts over the 6 year watch, but I’ll certainly ask the Gabapentin/Lyrica question, to get her medical university’s opinion on hurting vs helping PN types, as it seems those are the immediate drugs doctors throw at us. I’ll advise when I see her in 2 months.