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DiscussionUndiagnosed Autoimmune Disease - No one will listen to me
Autoimmune Diseases | Last Active: Jan 24 3:56pm | Replies (173)Comment receiving replies
Replies to "That is really interesring. I have been through the same thing whereas I have symptoms just..."
I have autoimmune symptoms. I have watched my ana and rh rise over the last two years so that my ana is just over the line. This is common from talking to other patients. It can continue to creep or just flip all at once. Of course, I would rather that it not rise any further because I am suffering enough already. In the meantime, I am trying to reduce stress and get more sleep. Actually I hurt so much, I have to anyway. I can't imagine what it would be like if these markers flip at once. Don't worry about being viewed as anxious. It's not their body that hurts. I good example is sepsis. Seniors have worn out immune systems, so sepsis markers in the blood often take awhile to show up and when they do the patient is often in bad shape and headed for death. That is why so many seniors die of sepsis. I watched this in my husband that was in the hospital for a broken shoulder. He was in more pain than was appropriate for his injury, he was disoriented, very weak and could not stand or pee, running a low grade fever, he was clammy and looked like a dead fish and his hands and feet started to swell. The ER doc said it was probably just dementia. Of course I knew that he did not have dementia. The hospital staff kept trying to get me to put him in the nursing home. I prayed in the parking lot in my truck. When I walked back into the ER, a shaft of light from the hallway was shining through the glass door of his room showing a dark substance on his hand. When I looked, he had poop on his hand. He must have pooped in his bed and in his delirium reached around and touched it. I looked up his arm to see if there was any on his arm, and I saw a 3 inch scarlet disk where they had a previous intravenous catheter. I asked the nurse what it was, and could it possibly be an infection and she said she did not think so. I insisted that the ER doc see it. He came in 6 hours later and admitted it was an infection. The ER doc gave my husband intravenous antibiotics for a systemic infection that he acquired in the hospital. He was coherent within 12 hours and his other symptoms slowly receded over days and months. Why am I telling you this story? Because that and other situations as his caregiver have taught me never to doubt my instinct. Just because they have not identified the cause or given it a name does not make it unreal. That is also the day that I became absolutely sure that there is a God. I had been sitting in that room day and night and had not seen it because they kept the room dark and because I was fairly stupid. Always, always believe in yourself. There is far too much accusation of patients, especially female patients, of being hysterical, being hypochondriacs and having somatic tendencies. Get regularly testing and try to reduce stress. It is just the system we have to work with. It will take a long time before women are treated with greater respect